I always bring my kids along with when
running errands, its a hassle, but we always succeed. My youngest is
a bolter, and my oldest is either melodramatic or energized by
change. We have have tantrums, meltdowns, time-outs, everything in
public. After 2 years of being a spectrum mom, I got over the
embarrassment quite quickly. I'm not a single mom but my partner
works full-time and I don't drive. We use public transit, or haul a
wagon or stroller with us. I also keep a toddler harness handy, the
kind with the plushy monkey on it.
What I don't see is other children like
my bolter anywhere I go. I test his limits as much as he tests mine.
I give him freedoms knowing I'll have to criticize and take it away
in a moment. I've chased him through malls, I've chased him down the
street, one winter I even chased him face-first into a snowbank.
I feel depressed and ashamed, despair
drains the colour from my face. I don't see anything wrong with
exposing him to the world, or the world to our lives. But it takes a
lot of courage to share our world with the public eye. I am proud of
him and all of his accomplishments. If an activity is within
commuting distance and ease, we'll do it. If its financially feasible
we do it. I laugh and smile with pride at my youngster as he acts
out. I chastise him when he gets out of line.
One day at the grocery store, I had my
3 year-old severely autistic, ADHD, nonverbal son with me in the seat
of the shopping cart, remaining temporarily entertained by a few
grapes. A young girl about 9 years old came up to me and squished the
loaf of bread on the top of my cart. She smiled and was enthralled by
the shiny packaging. Her mother on the other hand rushed over, gently
reminded her daughter that that was impolite, and apologized to me
for her daughter and pointed to autism as the culprit.
I was totally stunned; this sweet young
girl showed my bread some affection and I was filled with pride that
my placement of the bread was to her mind, an engineering delight.
What caught me off-guard even more so, was that I had with me, what I
think to be the most evident example of autism in the flesh that I've
ever seen and never thought for an instant that we passed by like
ordinary folks. I really would've sworn there was a neon sign above
our heads announcing the demise of our family lineage, of our social
lives, and anything that others may see as normal. Why then, didn't
this kindred mother see it?
I caught up to her later, as the urge
to share support just bubbled up inside of me. I told her that it was
okay, and that I understand her daughter's behaviour because my
children have autism too. She answered defensively and you could hear
the exhaustion in her voice, that her child was worse. She had severe
autism, not like the other milder autistic kids that lead normal
lives and can go to normal schools. This behaviour is why she never
takes her daughter shopping with her. I couldn't believe it, part of
me was jealous that she had that luxury to not bring her children,
another part of me was horrified at the idea. If I learned anything
about autism, life experiences are a big deal. I tried to reassure
her that I truly did understand, but to no avail.. this poor lady was
lost in her despair too. I wondered what I would look like when my
children grew to be the same age as hers. They rushed off to complete
the errand with as little interaction with people as possible,
shielding society from her daughter's quirky antics.
Would I feel that desperate? Would I
lose the silver lining of my children's uniqueness?
It stayed with me, that feeling of a
companion spirit in the fight against behaviour problems just passing
me by. I found myself going through the cash and my son eagerly ready
to punch in the numbers on the debit machine. Anticipating the
packing up of new edible goodies, and the cashier saying goodbye to
him.
It hit me. I made it my mission that he
will one day walk through that grocery store and make his own
purchase. All on his severely-autistic own.
I see my children have gifts. They have
gifts of sight into the natural world I could only hope that society
would ever appreciate. My bolter, he loves the wind in his hair and
dreams of being a bird, his appreciation of music and fascination
with physics astounds me. If he is giving all the positive influences
we can, would he someday find his calling and earn his right to
independence? My oldest has a memory that is beautiful to me, even if
he may remember some things I would've wished he hadn't, his
fascination with patterns and trends excites every bone in my
motherly body. Could he, with the same positive influences and tools
as his brother be able to acquire the skills he seems destined for?
The look on that little girl's face
said it all. It's hard to remember when you have to keep up to
therapists and teachers telling us about autism this, autism that.
They have gifts, just like anyone else does, they just show them on
their sleeves right beside their hearts.
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